Advocating For
Consumers

CARIN is not a patient advocacy organization but an organization that exists to advocate on behalf of the patients.

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Who are We?

The CARIN Alliance

We promote the ability for consumers and their authorized caregivers to gain digital access to their health information via non-proprietary application programming interfaces or APIs.

We envision a future where any consumer can choose any application to retrieve both their complete health record and their complete coverage information from any provider or plan in the country.

CARIN members

CARIN Board & Participants

CARIN members include leading organizations in three broad categories:

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Consumers &
Purchasers

Patients, Caregivers, Care Team, Consumer Advocates, Purchasers, and Others

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HIPAA Covered Entities

Providers, Health Plans and Clearinghouses, and their Business Associates

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HIPAA Non-covered
Entities

Consumer-facing Applications, Devices, Services, Platforms, Researchers, Infrastructure Firms, Standards Organizations, Identity Providers, Certifiers and Data Exchange Networks

Strategic Priorities

Our vision is to rapidly advance the ability for consumers and their authorized caregivers to easily get, use, and share their digital health information when, where, and how they want to achieve their goals.

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Trust barriers

We have developed a trust framework and code of conduct for consumer-directed health information exchange.

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Technical barriers

We develop Open Technical Standards for organizations to share more data with consumers with Less Friction.

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Adoption barriers

We are Working with Providers and Payers across the country on Technical Pilots that will implement our work for Benefit of all Consumers.

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Policy barriers

We provide public comments and make recommendations to policymakers including: Congress, the Department of Health and Human Services (HHS), Office of the National Coordinator for Health IT (ONC), Office of Civil Rights (OCR), Federal Trade Commission (FTC), and others to help advance consumer-directed exchange.

Guiding Principles

CARIN’s work is guided by the following guiding principles:

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Collaboration

Empower consumers and providers to partner in health care decisions at every level, wherever the consumer seeks care

02
Availability

Make consumer health information easy to get, use, and share by consumers and their care teams

03
Usability

Make consumer health information digital, valuable, and intuitively understood by the end user

04
Multi-platform

Use an ecosystem of innovative platforms while remaining platform agnostic

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Consensus best practices

Support industry best practices with implementing consumer-directed exchange

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Board Members

Organizations Directly Involved in Care, Administration, or Consumer Advocacy — including Providers, Health Systems, Payers, and Consumer Groups

Board Members Govern the Alliance and have Rights to Appoint Steering Committee Members and set the Mission, Strategy, Policy, and Activities.

CARIN Alliance is a stakeholder collective that provides open-source information to drive healthcare modernization on behalf of Health Care Professionals, Payers and Patients

We work with organizations to implement digital tools that will prepare your systems process for the future landscape

Please let us know how the CARIN Alliance can help your organization facilitate your needs. We are happy to schedule a call

Contact Us!

Join CARIN?

If you’d like to be considered for membership, please connect with a member of our team