Code of Conduct

The CARIN Alliance Code of Conduct for Consumer-facing Applications, represents the consensus view of a group of multi-sector stakeholders that includes leading providers, payers, health IT companies, EHR companies, consumer platform companies, consumers, caregivers, and others focused on advancing consumer-directed exchange across the U.S.

The code outlines the specific ways consumer-facing applications who are not covered by HIPAA should use, manage, and exchange personally identifiable health information.

A phone with a green pattern on the back of it.A phone with a green pattern on the back of it.
A phone with a green pattern on the back of it.
Code of Conduct

Vision For     Consumer Apps

The CARIN Alliance vision is to rapidly advance the ability for consumers and their authorized caregivers to easily get, use, and share their digital health information when, where, and how they want in order to achieve their goals. Specifically, we are promoting the ability for consumers and their authorized caregivers to gain digital access to their health information via open APIs.

We envision a future where any consumer can choose any application to retrieve both their complete health record and their complete claims information from any provider or plan in the country.

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Multi-Sector Stakeholders

The Code is based on internationally recognized standards including the Code of Fair Information Practices (FIP) (indicated in italics below), GDPR, CCPA, and numerous other consumer information sharing accepted principles and practices.

The Alliance is working collaboratively with other stakeholders and leaders in government to overcome the policy, cultural, and technological barriers to advancing consumer-directed exchange.

Now in its third version, the Code has been recommended as a best practice by the Office of the National Coordinator for Health IT, the Centers for Medicare and Medicaid Services, and the TEFCA Recognized Coordinating Entity. Numerous applications have attested to various versions of the Code 

View the Code


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CARIN strives to build consensus with industry leaders, consumer and caregiver advocates, and others.

We strongly encourage comments from all, but are especially interested in hearing from patients and caregivers.