Advocating For

CARIN is not a patient advocacy organization but an organization that exists to advocate on behalf of patients.

A diagram of a medical device with icons surrounding it.
Who are We?

The CARIN Alliance

We promote the ability for consumers and their authorized caregivers to gain digital access to their health information via non-proprietary application programming interfaces, or APIs.

We envision a future where any consumer can choose any application to retrieve both their complete health record and their complete coverage information from any provider or plan in the country.

Guiding Principles

CARIN's work is guided by the following principles:


Empower consumers and providers to partner in health care decisions at every level, wherever the consumer seeks care.


Make consumer health information easy to get, use, and share by consumers and their care teams.


Make consumer health information digital, valuable, and intuitively understood by the end user.


Use an ecosystem of innovative platforms while remaining platform agnostic.

Consensus best practices

Support industry best practices with implementing consumer-directed exchange.

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Strategic Priorities

Our vision is to rapidly advance the ability for consumers and their authorized caregivers to easily get, use, and share their digital health information when, where, and how they want to achieve their goals.

Trust barriers

We have developed a trust framework and code of conduct for consumer-directed health information exchange.

Technical barriers

We develop Open Technical Standards for organizations to share more data with consumers with less friction.

Adoption barriers

We are working with providers and payers across the country on Technical Pilots that will implement our work for the benefit of all consumers.

Policy barriers

We provide public comments and make recommendations to policymakers including: Congress, the Department of Health and Human Services (HHS), Office of the National Coordinator for Health IT (ONC), Office of Civil Rights (OCR), Federal Trade Commission (FTC), and others to help advance consumer-directed exchange.

CARIN Members

CARIN Board & Participants

CARIN members include leading organizations in three broad categories:

Consumers &

Patients, Caregivers, Care Team, Consumer Advocates, Purchasers, and Others.

HIPAA Covered Entities

Providers, Health Plans and Clearinghouses, and their Business Associates.

HIPAA Non-covered

Consumer-facing Applications, Devices, Services, Platforms, Researchers, Infrastructure Firms, Standards Organizations, Identity Providers, Certifiers and Data Exchange Networks.

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Board Members

Organizations directly involved in care, administration, or consumer advocacy — including providers, health systems, payers, and consumer groups.

Board members govern the Alliance and have rights to appoint Steering Committee members and set the mission, strategy, policy, and activities.

CARIN Alliance is a stakeholder collective that provides open-source information to drive health care modernization on behalf of health care professionals, payers, and patients.

We work with organizations to implement digital tools that will prepare your systems process for the future landscape.

Please let us know how the CARIN Alliance can help your organization facilitate its needs. We are happy to schedule a call.

Contact Us!

Want to join CARIN?

If you’d like to be considered for membership, please connect with a member of our team.